Thursday, August 11, 2011

1 week old (born with something rare)

1st off let me start this post off with a pic of our 1 week old baby girl Memphis:) She is SO SWEET! And we are so blessed to have her in our lives.

Now I want to say that I would've posted sooner, but we have been through allot over the past week. A day or so after she was born they did a Ultra Sound on her Brain. A Nero Surgeon came into our room early that morning and it just so happened to be the morning I was severely sleep deprived and couldn't think straight:(

What the Nero Surgeon began to tell us SHOCKED us. Our little girl was Born with something called "The Vein Of Galen Malformation". IT is Very Rare, and from what were told most likely genetically linked. Babies develop this in the early development stages of pregnancy.

It's a Vein in the brain that is Malformed. It is HUGE in fact, and doesn't even look like a vein. Its basically a "Aneurysm in the vein". One of the Main RISK with this is it can cause "Congestive Heart Failure". That can happen because there is TOO MUCH Blood being put off from the vein into the heart at one time.

Another Risk is hydrocephalus. This is where too much fluid builds up on the brain/ventricles. She has some of this on her ventricles. Although not enough at this point to need to put a "shunt" in.

She will definitely need surgery at some point for the vein of Galen. The Dr. wants to wait for a yr if we can because the bigger the baby the better of course when doing any surgery.

At this point her heart is stabilized and bpm is normal, so we'll try to let her grow. The Nero Surgeon wants to see her once a month, and for her pediatrician to keep an eye on her heart, head growth ex. And we're to watch for signs of anything wrong at home as well.

I'm going through Extreme Heart Breaking Concern for my Baby right now. It's late and I don't think I have much more energy to write.

If you want to know in more detail about "the vein of Galen malformation" just google it and plenty of info should pop up.

I'm asking that everyone keep us in your Prayers. I can not really begin to explain what I'm going through. Although even in this situation I am Thankful to God for Both of my Children. We're honestly going to have to take it one day at a time right now. For now that's all I can manage it seems. And just that is a huge struggle for me. Going to try to get some sleep, we have a appt in the morning with the pediatrician.

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Friday, August 5, 2011

*Memphis* Isabella is here!

She was born on August 4th, At 9:00 pm, weight 7 lbs 8 oz., and 20 1/4 inches long.

Both baby & me are doing well. I'm even attempting to breast feed this time, and that is going well so far:)

Gonna try to hopefully get a nap in
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Thursday, August 4, 2011

39 weeks & 1 day

Well I went to my dr appt at 1pm today, and all went pretty good. I'm super excited that the dr was on the same page with me as far as inducing! They sent me straight over to the hospital:)

I'm settled now in L&D, they broke my water, now just waiting on the "pit" to move things I'm sure after they give me that I'll be asking for an epidural not long afterwards. I'm at 3 to 4cm right now.

Just wanted to update y'all before pain kicks Hoping this goes fast and smooth! Yay! We're having a baby! Again! Feels almost like a dream still.
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Wednesday, August 3, 2011

39 week belly pic...

Trying to post this pic from my phone for the 1st time. Lol Guess I'll see how it goes. My last appt with the high risk Dr is tomorrow! Yay! And if they don't go ahead an just keep me tomorrow they'll give me my induction date then. I'm really uncomfortable at this point from all the bh contractions, and not able to sleep much since I'm in pain at night. So I'm ready to meet this little girl ASAP! Lol Will be updating tomorrow on my appt. I'm curious to hear how much they'll tell me she's weighing now from the ultrasound measurements. I'm getting excited ladies:D
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